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CEP120 – Ciliopathy Spectrum

Centrosomal protein 120 (CEP120) is essential for centriole elongation and ciliogenesis. Autosomal recessive CEP120 mutations manifest as a spectrum of complex ciliopathies, including Joubert syndrome, Meckel syndrome and asphyxiating thoracic dystrophy, reflecting multi-organ involvement and variable severity.

In a cohort of 145 patients with Joubert syndrome, 15 with oral-facial-digital syndrome VI, 21 Meckel syndrome fetuses and one fetus with tectocerebellar dysraphia and occipital encephalocele, plus 346 targeted-sequencing probands, six individuals were found to harbor nine distinct CEP120 variants, accounting for ~1% of ciliopathy cases (PMID:27208211). No clear genotype–phenotype correlation was observed across classical and severe presentations.

The variant spectrum comprises seven predicted loss-of-function alleles—including c.1175C>G (p.Ser392Ter) and c.2917C>T (p.Arg973Ter)—and two missense changes. All changes were detected in trans, consistent with autosomal recessive inheritance.

Functional studies using CRISPR/Cas9 CEP120 knockout in p53-deficient RPE1 cells demonstrated short centrioles devoid of distal and subdistal appendages, impaired recruitment of C2CD3 and Talpid3, and abolished ciliogenesis. A disease-associated p.Ile975Ser variant exhibited reduced binding to C2CD3 and disrupted cilia assembly, supporting a loss-of-function mechanism (PMID:30988386).

Together, genetic and experimental data substantiate CEP120 haploinsufficiency as a cause of autosomal recessive ciliopathies, with loss-of-function variants leading to defective centriole appendage formation and impaired ciliary biogenesis.

Key Take-home: CEP120 genetic testing is recommended in the diagnostic workup of recessive ciliopathies to confirm molecular diagnosis and guide clinical management.

References

  • Journal of medical genetics • 2016 • Mutations in CEP120 cause Joubert syndrome as well as complex ciliopathy phenotypes. PMID:27208211
  • Scientific reports • 2019 • CEP120 interacts with C2CD3 and Talpid3 and is required for centriole appendage assembly and ciliogenesis. PMID:30988386

Evidence Based Scoring (AI generated)

Gene–Disease Association

Moderate

Six unrelated probands with nine distinct CEP120 variants in ciliopathy cases (~1% prevalence) ([PMID:27208211]); concordant functional data demonstrates centrosomal and ciliary defects.

Genetic Evidence

Moderate

Six probands carrying seven truncating and two missense alleles in trans; autosomal recessive segregation consistent across families.

Functional Evidence

Moderate

CEP120 knockout disrupts centriole appendage assembly and cilia formation; p.Ile975Ser impairs C2CD3 binding and ciliogenesis ([PMID:30988386]).