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FOXRED1 has been implicated in Leigh syndrome through identification of biallelic variants in multiple unrelated families. Initial discovery in a consanguineous pedigree employed homozygosity mapping to uncover a homozygous c.1054C>T (p.Arg352Trp) variant, with lentiviral-mediated transgene expression restoring complex I activity in patient fibroblasts (PMID:20858599).
Autosomal recessive inheritance is supported by at least 10 unrelated probands harboring two pathogenic alleles, including consanguineous and outbred cohorts (PMID:33613441; PMID:38283147). Segregation analyses across pedigrees consistently align with recessive transmission.
The variant spectrum encompasses frameshift (e.g., c.862_871dup (p.Ala291fs)), nonsense (c.90G>A (p.Trp30Ter)), splice-site (c.733+1G>A), and missense (c.920G>A (p.Gly307Glu)) alterations. Notably, recurrent variants c.1054C>T (p.Arg352Trp) and c.612_615dupAGTG (p.Ala206SerfsTer15) have been observed in multiple populations (PMID:33613441; PMID:31065540).
Clinically, affected individuals present with early-onset encephalopathy characterized by global developmental delay (HP:0001263), epilepsy (HP:0001250), lactic acidosis (HP:0003128), and cerebral atrophy (HP:0002058). Additional features include pulmonary hypertension and periventricular cysts in isolated cases.
Functional assays demonstrate decreased complex I holoenzyme levels and enzymatic activity in patient-derived fibroblasts, which are rescued by wild-type FOXRED1 complementation (PMID:20858599; PMID:31434271). Biochemical investigations implicate loss of FAD-dependent oxidoreductase activity in defective complex I assembly (PMID:20818383).
No conflicting evidence has been reported to dispute this association. Collectively, the genetic and experimental data support a Strong clinical validity for FOXRED1 in Leigh syndrome. Key take-home: inclusion of FOXRED1 in diagnostic panels for mitochondrial complex I deficiencies enhances molecular diagnosis and patient management.
Gene–Disease AssociationStrongAt least 10 unrelated probands with biallelic FOXRED1 variants in autosomal recessive families (PMID:33613441; PMID:38283147), multi-study reports including consanguineous pedigree and diverse populations, and cross-cohort consistency. Genetic EvidenceStrongTen distinct pathogenic variants (multiple frameshift, nonsense, splice-site, and missense) identified in unrelated individuals fulfilling autosomal recessive inheritance and reaching the ClinGen genetic evidence cap. Functional EvidenceModerateCellular complementation in patient fibroblasts (PMID:20858599; PMID:31434271) and FAD-dependent oxidoreductase assays confirm defective complex I assembly and rescue by wild-type FOXRED1. |